One Magic Pill and 24 Months Later

2018-04-07T20:06:26+00:00November 6th, 2014|Stories of Hope|5 Comments

By Michael McCarty, lung cancer survivor and advocate

Michael McCarty

Michael in a meeting on the Hill, September 2014

It was a hot day in early August, 2012 and I was out running and ran into some friends on the road and decided to join them. I knew for the last several months that my running pace was off and my workouts were less than to be desired but I kept thinking I was simply lacking motivation after running a half-marathon earlier in the summer.

As the four of us started off, I called on my body to push itself and set a healthy pace but my body had no answer and its silent stubbornness left me frustrated. And after falling behind from the group, I stopped running and started walking. My friends were kind and tried to reassure me that the heat was the cause. However, I knew better. And less than a week later, I felt a lymph node to start to pop out on the right side just above my clavicle.

After x-rays, CTs, several doctors’ visits (the doctors knowing I wasn’t a smoker and in good shape could only believe that I had some type of pulmonary infection) and a referral to a pulmonary specialist who couldn’t see me for another eight weeks, I was able to get a general surgeon to do a biopsy on the lymph node.

I will never forget the day he called me into his office to tell me I had lung cancer and it was advanced. My wife and I left the doctor’s office and we sat down in the first chairs we saw and I then pointed to the survival rate I had written down on a piece of paper and I started to cry. And for the next month, I was lost in a fog of anxiety, fear and anger as to why this was happening to me – a 43 year old runner, a lifelong non-smoker, a husband and a father of three. Prayer seemed to be my only comfort.

I was originally diagnosed as Stage IIIB (adenocarcinoma of the lung which quickly became deemed Stage IV). As to no surprise, I was deemed inoperable but was able to get into a trial at MD Anderson. After 11 doses of chemo and 38 trips to the proton center, I received the glorious news that I was NED. This lasted for about 11 months until I went into the hospital with double pneumonia.

There I discovered I had pleural effusion, pericardial effusion, nine (9) cm mass in the right upper lobe, nodules on the left lung, cancerous tumor on the spine, cancerous lesions in the eyes, many lymph nodes lighting up throughout my chest, and two lymph nodes pushing against my esophagus preventing me from eating.

Even though I made it home, I was in tremendous pain, on oxygen 24/7 and during a short month’s time I lost 40 pounds. My local oncologist gave me months to live as the cancer was spreading and spreading quickly. However, I was tested for the second time for the ALK mutation. This time, I unequivocally tested positive for the ALK fusion.

I was placed on XALKORI (crizotinib) and within a week, my pain was gone, I was off oxygen, and felt well enough to get into the gym (although only for a very light workout). Within weeks, my family and I were vacationing in the Keys giving God praise for what we call the “Magic Pill”. My first PET scan showed no evidence of my disease and my last scan confirmed that I remain NED.

My doctors cautioned me that I am not in remission but merely suppression. Call it what you wish, I have been given time, precious time, and during this time, now two years and counting, I want to help organizations like Lung Cancer Alliance to develop awareness about lung cancer and ensure that lung cancer receives equitable funding for research. Through research more drugs, like crizotinib, can be developed and hopefully not just providing survivors like me suppression but real life sustaining remission.

So get involved and set yourself free by helping others fight and beat this horrible disease. We too can build an army of survivors.

5 Comments

  1. Anne March 23, 2018 at 9:16 pm - Reply

    Hello Michael. I just read this story and see some similarities with my husband. He is a runner and was diagnosed in September with nsclc 3a. He has gone through chemo and radiation and is now in an immunotherapy trial. We have rarely seen or read about anyone that is a runner with lc. My husband’s treatments seemed to have gone better in some ways (chemo/radiation) and not so well (first dose of immunotherapy) in part, I believe, due to his level of fitness. Just wondering how you are doing and if you encountered similar results as a part of your own treatments. BTW, he has continued to run throughout everything. I hope you have had continued success with your treatment. Thank you, Anne

    • April October 27, 2018 at 12:41 pm - Reply

      My son, 27 years old, also a runner was having trouble keeping his pace and would cough a lot at night. He finally went to the doctor (thanks to his wife) and was diagnosed with Stage 4 with Alk mutation. He started taking Alectinib about a month ago and cough is much better. He’s even planning on running a marathon in December. I know that with targeted therapy your body eventually grows a defense, but praying that there will be something else when that happens.

  2. Jerri Gage August 25, 2018 at 9:33 am - Reply

    I have a different type of cancer, but my local oncolgist told me I had only months to live . That was two years ago. That is when I went to MD Anderson and doing fine so far.

  3. Emily September 1, 2018 at 2:41 am - Reply

    Yay! 43 yr old. You have inspired me. I have stage IV lung. Has metastasized to my breast. They just put me on xalkori. Last night I took my first one. I have a different outlook on this whole thing after reading your story. Thank you.

    • Gabriele Wright September 10, 2018 at 4:47 pm - Reply

      Keep up the strong fight, Emily! If you have questions about your lung cancer or just need someone to talk to, please contact our HelpLine at 1-800-298-2436 or email support@lungcanceralliance.org. Sending positive vibes your way!

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